Centre de référence
des maladies rares
du pancréas

Patient associations

Associations

APCH - Association des pancréatites chroniques héréditaires

Chronic Hereditary Pancreatitis Association

www.association-apch.org

 

 

The A.P.C.H. is an association for patients

- assisting families dealing with hereditary chronic pancreatitis (a rare disorder with no specific treatment capable of slowing progression of the disease,

- monitoring current and new information on the disorder

Aims of A.P.C.H. include:

- Offering technical assistance and moral support to families faced with hereditary chronic pancreatitis,

- Contributing to research, and improving methods of care.

Contact us here: pancreasgene@gmail.com

Nadine MESLET, President of the Association

 

AFHYMAGE-french speaker's association for major genetic hypertriglyceridaemia

https://afhymage.com/

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